A lot of people are wondering what is going on with Eleanor’s eye sight so we thought we’d put up a page all about it.
Eleanor is now officially registered as “severely sight impaired (blind)”.
In simple terms; the cables that connect her lovely eyes to the back of her brain that process what she sees, are damaged beyond repair. Prescription glasses will not fix her eye sight as it is not her eyes that are at fault. Eleanor has a very complex vision problem.
It is very difficult to explain what Eleanor can see; she sees light and dark, she sees huge objects but no detail, she sees changes in floor coverings if they go from light to dark or visa versa. Eleanor can’t really interpret colour. Eleanor can’t really follow objects. Some days Eleanor seems to see better than others, but what she might see is so limited it is of no use to her in day to day life.
Eleanor’s RIGHT Eye…
The messages from her right eye are worse than what gets through from her left eye. Sometimes she sees flashes of light in her right eye but it is not her eye, it is the damaged nerves playing havoc with her brain, it’s like an untuned TV channel – she doesn’t actually see anything that you would see. Think of her right eye being almost disconnected from the computer that processes the pictures.
Eleanor’s LEFT Eye…
Eleanor sees very very little through her left eye, possibly only through a minuscule, blurred, colourless, extremely short sighted pinhole, but as she is so young it is very difficult to explain what she does see. Eleanor is getting used to it and getting on with the life she does have.
Eleanor bumps in to things, she can’t see things she drops, she can’t see her food, she can’t see her plate, she cannot see our faces (many things we all take for granted) BUT she’s coping very well adapting to having literally no vision and we are totally committed to helping her through every step of the way. Eleanor is NOT totally in the dark and we hope she never will be.
Eleanor’s Brain Tumour is pressing on and has invaded her optical nerves in the Hypothalamus area of her brain, just over the Optic Chiasm. There are literally millions of nerve fibres that connect your eyes to your brain’s visual message centre at the back of your head.
With currently known medicines and treatments, it is not possible to repair damaged optical nerves.
The Doctors only give Eleanor a 30% chance of any improvement from where she is now with her eye sight, so it looks like she is stuck this way until the medical profession make advances that might repair her optical nerves, but this is a very complex issue and may take many years before it becomes a reality. Eleanor does however have age on her side, so she might one day be able to see a lot better again, there’s always hope!
With all of the above in mind, it is still not the main problem at play here. Eleanor still has some potentially stubborn Brain Tumour/s that need to be kept under control and managed, so they do not do any further damage to other delicate parts of her brain. This will take many years of gruelling chemotherapy and when she is a bit older, possibly (but hopefully not) some form of Radiotherapy.
Eleanor loves music, she also loves listening to books and is keen to learn new languages, as well as her own. The future will hopefully still hold many opportunities for Eleanor even if she does not have the gift of sight anymore.